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Finance - tax rate increase6 now, was diagnosed with CMT type 2A last December. A pistol who loves to play baseball and run around outside, Boston has not let CMT slow him down. He’s still play- ing with his friends on an 8-and-under tournament team coached by his dad. He wears braces on his legs most of the time when he’s pitching, catching, play- ing first or third base, diving for balls and sliding safely into home. Fatigue and worn-out muscles are more frequent now, and Boston often sports what his grandmother calls “car- toon knots” on his head and elbows. None of that bothers Boston much. Watching him endure pain, dealing with doctors and knowing there is currently no cure for CMT bothers the boy’s par- ents and grandparents greatly. “It’s a lot tougher on us than it is on Boston,” his father Timmy Gray said last week. “Boston doesn’t have a care in the world. ... From sunup to sundown, it’s go, go, go.” “We had never heard of this disease,” his mom Devon added. “A lot of people I know have never heard of this disease.” CMT is one of the most common in- herited genetic diseases, affecting an estimated 150,000 children and adults in the United States and 2.8 million people worldwide. It causes chronic pain and fa- tigue. When she heard about the doctor’s original diagnosis late last year, Boston’s grandmother couldn’t believe it. “I was stunned,” Brenda Gray said. “I knew something was wrong with my grandson because he fell a lot. The arch in his foot is also so high, but that little rascal can snow ski as good as any adult on two skis.” Not one to sit idly by and watch her grandson’s health deteriorate, Brenda Gray came up with a plan. The boss of Sam Houston State’s volleyball program for 30-plus years, Gray wants to tell people about this disease and also help the folks at the Charcot-Marie-Tooth Association by raising research money to find a cure for CMT. Mostly, though, the coach wants to salute her little buddy Boston, who is the spitting image of her son, a former Huntsville Hornet and SHSU Bearkat baseball standout. “Boston’s a clone of Timmy. It’s un- canny really,” Coach Gray said. “His likes, dislikes, they’re all the same. He’s also got a big, big heart. “When I started thinking about this,” Brenda added, “I thought everybody does breast cancer awareness, every- body does a Pink Out game. I want to do something for Boston. Hopefully, we can raise $10,000. That’s the dream, that’s the goal. All of it will go to Boston’s strain of CMT.” On Sept. 15, the Bearkats volleyball team will host a CMT Awareness Night at Johnson Coliseum. The goal is to in- crease awareness of CMT, to highlight the stories of CMT patients and to raise money to help fund the CMTA’s Strategy to Accelerate Research (STAR) program, which is committed to finding a cure for CMT. Friends of the family, volleyball fans and anyone who wants to join the fight can purchase STARs in advance of the Bearkats’ match against longtime ri- val Texas State. STARs are $10 each, or three for $25. Corporate STARs are available for $100. In addition to the STARs, a portion of the ticket sales will be donated to the cause by the university. All of the pro- ceeds from the CMT Awareness Night will be given to the fight against CMT. “There’s no cure for CMT now, so that’s why we’re raising money to go in for research,” Coach Gray said. Brenda Gray sent letters to her coaching colleagues in the Southland Conference asking for their support. The coach has heard from many of her former players who knew Timmy when he was about Boston’s age. They are pitching in to help. “We’ve gotten a lot of responses. Stephen F. (Austin) was one of the first teams on board,” Coach Gray said. “Texas State wanted to be involved, (Bearkats basketball) Coach (Jason) Hooten has been great help. We’ve gotten so much support from other teams — SFA, Texas State, UTA and UTSA. We’ve been butt- ing heads with those coaches for ump - teen years, but all of them have respond- ed and all of them have said they hope we have a great night.” Devon and Timmy are excited about the response, not only from the college volleyball community, but from their church family, their school friends and many people all over Huntsville and Walker County. “The people at Alpha Omega Academy, University Heights Baptist Church and Sam Houston, they’ve all been great,” Devon said. “We’ve gotten so much support, and we’re telling peo- ple any little bit will help.” For more information, or to donate, go to http://www.cmtausa.org/event/ cmt-awareness-shsu-volleyball/. First serve on Sept. 15 is set for 6:30 p.m. SUNDAY, SEPTEMBER 6, 2015 THE HUNTSVILLE ITEM 9A FIGHT Continued from page 1A